Showing posts with label Christian. Show all posts
Showing posts with label Christian. Show all posts

Wednesday, August 5, 2015

Angels in Disguise




In my book, Life With Charley: A Memoir of Down Syndrome, I have a chapter where I talk about angels. In the chapter, titled "Pwomp and Circumstance," we are shopping for a suit for Charley to wear to the prom. Brad and I had little money to spend, so we found ourselves at Goodwill looking around. Out of nowhere, a man approaches and starts holding up clothing items for Charley to try. At the end of this post, I will include a portion of the chapter...

I've been thinking about Angels lately, and how they touch us. Angels kind of come out of nowhere, to tap us on the shoulder and remind us that life is precious. 

I've always thought of people with Down syndrome to special angels. They touch us in ways other people cannot. 

These are some of the fantastic folks from Angels in Disguise



Just to show you what kind of people they are...



Charley and I contacted them and let them know we were in Louisville. My mother was in the hospital, and we were in need of some serious cheering up. Before we knew it, we were having breakfast together, and Charley had a slew of new friends. 




Later, when Charley put his head on the pillow in the hotel room, he said, "Mom, I like my more fwents."

I said, "How could you not?" 

He wasn't alone. I like them too. Charley knows who likes him and who doesn't. He knows who tolerates him and who wants to be his friend. 



We found a restaurant full of friends that day.


Today we are celebrating our new friends, by posting some photos and adding their Angels in Disguise link to our sidebar. Please give them a visit, won't you? This is a fabulous group of people who celebrate the gift of Down syndrome. 



Thanks Angels in Disguisefor making us feel so welcome...you made Charley very happy! And well, you know the drill...when Mama's happy, everybody's happy!

As promised, here is an excerpt from Life with Charley. 


Charley’s Angel 

You know how some things keep coming back to you long after they’ve happened? That’s what happened to me, and I’ve played it over and over in my mind. I thought I was hearing things when Jordan said she’d been the one to ask Charley to the prom. “But Jordan, you can go with anyone,” I’d said to her. “I don’t want to go with anyone,” she’d said. 

Oh, me of little faith. How could I have doubted him? What gives me the right to assume he can’t get a date just because he has DS? Why wouldn’t someone be thrilled to be with him? He’s the most fun person I know. Apparently, Jordan thought so too. 

It’s been nearly six months since that day. Since Jordan asked him to her junior prom. Since she became his reason to breathe. And now, here we are, just three weeks from the big day. But first we have to make it through spring break, and I can’t think of a better way than to take him shopping for a tuxedo. Problem is, we can’t afford one. There’s a Goodwill store down the road, and I’ve seen some suits there, so off we go. As his luck would have it, there are no tuxes. As my luck would have it, Charley doesn’t care if it’s a tux or not. 

Brad’s at work this morning, unable to join us for this outing, but that’s okay. He’s elected to take Charley shoe shopping later in the week. Meanwhile, Charley and I are standing at the coat rack in the back of the store. “I don’t know, Son, you’ll just have to try them all.” 

He tries on three or four, but nothing works, when out of nowhere there’s a man standing next to us. He’s a tall man, well over six feet I’m sure, and he’s dressed in khakis and a polo shirt. I have no idea where he came from, but there he is, picking items off the rack, though barely looking at them. I notice he’s watching Charley. 

“I go pwomp,” Charley says to the man, like he’s known him for years. “Oh?” “Yeah. Me, Jordan.”

I tell the man Charley’s looking for a coat to wear to the prom.

The man takes a blazer off the rack and hands it to me. “Have him try this one,” he says. 

Charley puts it on but the sleeves come down past his hands. The man hands us another. Then another. They are all too long. Until the last one. It turns out to be Charley’s size but, oops, there’s a skirt with it. 

“Oh for pity’s sake, it’s a girl’s suit,” I say to Charley. 

“I like it,” he says, and sure enough it’s a perfect fit. 

The man says, “Just don’t tell anyone and they’ll never know.”

The next thing I know the man is helping us look for a shirt and tie, and Charley is all set with a “tussado” for the prom. 

“I like him,” Charley says. “Tell the man thank you.” Charley says, “Can I keep him?” 

I look at Charley for a split second. “He’s not a puppy.” The two of us laugh, but when I turn my head back so see the man’s reaction, he’s gone. 

“Where’d he go?” I ask Charley. Charley shrugs his shoulders. “I no know. Wheh is he?”

“Son, tell me the truth. There was a man here, just a second ago. Right?”

***

This is where I’ll stop for now. If you want to know what happens you’ll need to read the book. You can find it here:



***Thanks for visiting our Life With Charley blog. Please, come back often! 



Sunday, May 24, 2015

Hallelujah Hallow



 
On the porch...listening to his "hallow"
 
Charley stayed home from his Day program today. Our plan was to do some work around the house. But when it came time to dig in, well, a certain someone I know and love planted himself on the couch.
 
So I begged. Pleaded. Bribed. Moaned. Pleeeease, Charley. You promised you would help.
 
Think it did any good? Well, not exactly.
 
I folded clothes. He danced to High School Musical.
 
"Son," I said. "Turn off that radio. Stop that dancing. We've got chores to do. Get busy."
 
I scrubbed the sink. He played with the cat.
 
I cleaned out the closet. He went to the fridge and sprawled out on the couch to eat. And eat. And, EAT.
 
WELL, THIS JUST BURNED ME UP.
 
I did what I suspect most Mom's do. I threatened.
 
If you don't get off your rear, this will happen...
 
You're gonna to be sorry, because that will happen...
 
I'm gonna tell Dad...and anything can and will happen...
 
Finally, out of sheer frustration I sat down and cried. I don't know why, exactly. It just seemed like the right thing to do.
 
What did he do? He continued to eat. And luxuriate on the couch. And eat.

"Stop crying Mom."

Stop crying? Sounded good. But how? I just kept at him. Yap. Yap. Yap. As if he would get the message that he was being an inconsiderate jerk. My hissy fit was of no use to me. Even I could see that.
 
And then something happened. I shut up. I just sat there and cut him off from all conversation.
 
He doesn't like that. Let me rephrase that...he can't. stand. it.
 
He tried, believe me.
 
Mom, what doin?
 
Mom, I tired.
 
Mom, work is hard.
 
Still, no comment from me. Let me tell you what, Buster, I am NOT talking to YOU.

I admit it. I felt sorry for myself. Why should I have to do all the work? I've got an able-bodied 24 year old. He can do the grunt work. Lift the heavy stuff. Help a little.

Somewhere between my no-talking and his please-talk-to-me stand-off, he turned the dial on the radio to the middle of a sermon on repentance.
 
The preacher talked about taking responsibility for your life, and having the guts to apologize when you've been wrong. But not just saying you are sorry, he said you have to change your behavior or the repentance doesn't count. He said that we all sometimes make poor choices, and that if we want to really be happy in this life, we have to be responsible for our own happiness, and that includes how we treat others.
 
What happened next should have surprised me, but it didn't. Because I know Charley.
 
There, standing in front of me, was my son, holding out his hand, helping me up. He looked me in the eye and said, "Mommy, God said we-pen-dance. On da hallow (that's what Charley calls his radio). I listened."
 
I said, "God was on the radio?"
 
He said, "Yep. He said we-pen-dance."
 
"Repentance?"
 
"Yeah, Mom. We-pen-dance. I sorry, Mom. What do?"
 
And there went my frown, right out the window. And why not? I couldn't help smiling as he explained that the voice on the radio belonged to God. Hallelujah.
 
So there he was, apologizing. Repenting. Asking me what I wanted him to do. Changing his behavior. Doing the right thing.
 
Here was this young man with special needs, who some might think of as marginal, or simple, taking responsibility, asking for some assignment, telling me, "I work now. "

And with that, he went to the dryer and pulled the laundry out, and loaded the washer. Then he proceeded out to the end of the driveway and pulled the garbage can back up to the house (and put it where it is supposed to go). Next, he assisted as I cleaned off the Baker's cabinet. And this time, not one complaint.

"See?" he said. "I make you pappy."
 
And it did. It made me so happy I cried again.
 
Charley was not the least bit amused.
 
"Mom, you no cry," he said. "You listen, you we-pen-dance. God said." Then he headed to the porch with his "hallow" to do a little dance. Right out there where all the neighbors could see. Strutting his stuff.
 
And you know what? That made me laugh. Not that he was trying to be funny, but when your kid hears the word repentance and then dances a little jig on the porch, what's a Mom to do?

You do a little jig, that's what. You park your marching orders at the door. You lay your burdens down. You look into the face of your child who says he's listened to God, and you do a little we-pen-dance. And you listen to the wisdom of that extra chromosome called Down syndrome. 
 
And if you're not careful, you just might laugh a little more . You just might see the world in a different way. You might hear something worth dancing about on that Hallelujah Hollow.

 
********

Thank you for reading my blog! Please come back soon!
 
 
Sherry McCaulley Palmer is the author of Life With Charley: A Memoir of Down Syndrome Adoption, published by Zharmae Publishing Press, available on Amazon.com. http://www.amazon.com/Life-Charley-Sherry-Palmer/dp/1937365700/ref=sr_1_1?ie=UTF8&qid=1432478401&sr=8-1&keywords=life+with+charley
 
You can read the first two chapters free, here: http://firstreadzfirst.com/2014/10/22/45/
 
Please visit Charley on his Facebook page at: Life with Charley - And Down Syndrome:
https://www.facebook.com/pages/Life-with-Charley-and-Down-syndrome/514830105272710?ref=aymt_homepage_panel

 
 
 
 
 
 
 
 
 
 


 
 
 
 

Friday, May 15, 2015

Heart Warriors



So pleased to announce that my guest blog is featured today In Blog Z...

In my book, Life with Charley, I have a chapter titled “Everyone’s Arena.” It’s all about the Special Olympics.

Now. You may think the focus is on the athletes. And it is, as it should be. It’s their time. But there’s something else. I want to talk about coaches. And peer tutors. And volunteers. And heart. And smiles. And those who make it possible for our athletes to shine.

It’s heart that leaves a family and boards the bus with around 60 athletes, 20 coaches, and 20 peer tutors (and that’s just the bus from our area) seeing to their every need, both physically and emotionally.

It’s heart that guides and directs the athletes from event to event, pushing wheelchairs, monitoring, seeing to it that medications are taken on time, making sure they get their snacks, stay hydrated, wear sunscreen.

It’s heart that stands on the sidelines, cheering, yelling, “You can do it!”

It’s heart that’s been on the go all day, yet finds the energy to be that dance partner for that athlete who otherwise might sit this one out.

It’s heart that sends my Charley home with a smile like no other.

You see, these aren’t just ordinary hearts. These are heart warriors. 
Warriors in charge of other hearts. Warriors that go out in search of smiles. Warriors that capture the very spirit of what it means to be a Special Olympian and the smiles that go with it.

Smiles like the one my son has when he arrives home.

Smiling is not unusual for him. It’s something that comes natural, like breathing. But this is a different smile.This is a smile that says, “I’ve got friends.”

Mike and Charley
Mike and Charley
“I belong.”
“I’m one of them.”
“I am somebody.”
Yeah. That smile.

It’s a smile of knowing acceptance. Of being a star. Of knowing you’ve made it to the finish line. Of standing shoulder to shoulder with your teammates. Posing for the picture.

It’s a smile that’s heard the thunder of applause, and knowing it’s meant for you.

Each time my Charley comes home from the Special Olympics, tired, happy, proud, I say a silent prayer of thanks. For the Special Olympics that puts that smile on my son’s face. For the hearts that give it freely. For those who do what few others would do, reaching into the hearts of those Special Olympians and pulling out those time of your life smiles.

Today my husband and I stood in the parking lot and watched as the bus drove away. The bus that would deliver the most important person in our lives to the one place that could help him find that smile.

So today I want to turn the spotlight on those who make it possible. 

Those who heart others.

Those who send our kids home with that smile.

I want these heart warriors to know that for those of us back home looking forward to that smile, rest assured. That smile belongs to them.
***
Sherry is holding a “Life with Charley Gratitude Giveaway.” To find out more about the contest, go to:
 goodreads.com/giveaway/show/138960-life-with-charley-a-memoir-of-down-syndrome-adoption
You can find out more about Sherry and Charley at:
lifewithcharley.blogspot.com/
Charley’s Facebook: facebook.com/pages/Life-with-Charley-and-Down-syndrome/514830105272710?ref=bookmarks
Twitter: @LifeWithCharley
Amazon Author Page: amazon.com/Sherry-McCaulley-Palmer/e/B00OYYANFA/ref=ntt_dp_epwbk_0
***
Sherry Palmer is the author of Life With Charley: A Memoir of Down Syndrome Adoption.
About the book:
Step into the world of special needs parenting and catch a heartwarming glimpse of unconditional love.
Charley is funny, ridiculous, ornery, and charismatic. He also has Down syndrome, and Sherry Palmer thanks her stars each and every night for the blessing that is Charley. Sherry knew that her life would change drastically when she and her husband decided to adopt a baby boy with Down syndrome, and she knew they would struggle at times with his developmental challenges, with other peoples’ perceptions, and with their own emotions. What she didn't know was just how amazing their world would become once Charley was in their lives—and in their hearts.
What the couple wants is to be parents. Little do they know that adopting a baby with Down syndrome breaks all the rules.
What the family wants is to talk them out of it. Thus begins a phone-calling campaign of do-gooders warning of the pitfalls. Surely this couple has no idea what they are doing. Surely they realize it’s a lifetime choice. What these well-intentioned people don’t know is that it’s the chance of a lifetime.
What the church wants is a typical pastor’s family (The handsome pastor. The thin, perfect pastor’s wife. The well-behaved, well-mannered preacher’s kid). What they get is the polar opposite, and what they find out is that sometimes even church life can have its challenges.

From the unlikeliest of sources comes a powerful message that the key to true happiness is in just being yourself.


Please visit! 



In the meantime, I'm excited to announce our Life With Charley Giveaway!

Announcing our "Life With Charley" Gratitude Giveaway!

Beginning today and ending May 30th you can enter to win one copy of "Life With Charley: A Memoir of Down Syndrome Adoption," signed by Charley and me.

This Gratitude Giveaway is in honor of the teachers, coaches, peer tutors, and volunteers who have given so much of themselves to make my son happy. 

In fact, at the time of this posting, they are on a bus on their way to the Special Olympics in Nashville. Rather than spending the weekend with their families, they are taking Charley and roughly 60 others to compete in the state games. Folks such as Gina Legg, Mike Sowards,  Camryn Cupp, Nate Berryman,  Skylar Gilliam, and Gabriel Boninoma. And that's just this trip! A host of others have taken their turns as well, such as Gerry Williams, and Yvette Dinger-Bennett, Miranda Williams, Jordan Childress, and Karri Byrd.

I'm naming those I know of who have worked with Charley's group. I know there are others. If I have missed your name it was not on purpose. There's no way I could name them all, and that's the point. There are many who have been so good to Charley and all of the Special Olympians on the state and local level. There's nothing Charley likes more, and Brad and I are incredibly grateful that he is included.

I'm so excited to have this chance to celebrate the Special Olympics with this Gratitude Giveaway. 

I know our athletes are special, but this giveaway is all about gratitude for those who make the Special Olympics possible for our loved ones. Those who, as I write about in my book, make the Special Olympics "Everyone's Arena." 

As the Special Olympics motto says, "Let me win, but if I cannot win, let me be brave in the attempt." It is these service-oriented volunteers who create the arena where everyone is a winner.

On behalf of my Special Olympian: Thank you.

Here's the link to sign up for the giveaway on Goodreads: https://www.goodreads.com/giveaway/show/138960-life-with-charley-a-memoir-of-down-syndrome-adoption

I will be re-running this post over the next couple of weeks along with pictures of the Special Olympics. Please share so we can honor these volunteers properly. Thanks!




Sunday, January 4, 2015

Preacher's Son Apprehended. A-rest to Follow



N


                                                       Busted!

Knoxville, TN. 

In the wee hours of Saturday, Precinct 8612 in Jefferson County received a frantic phone call reporting a break-in at the home of the Reverend Brad Palmer. 

Roving reporter Matilda Farnsworth was on the scene of the crime, where the Preacher's wife stated that just after 3:00 a.m. she heard the sound of her son's bedroom door opening, followed by a flash of light. Moments later she found the refrigerator door ajar, and that's when she knew there'd been a break-in.

In an exclusive interview, Mrs. Palmer said she noticed her 24-year old son moving in a suspicious manner through the hallway, then disappearing into his room. She asked if anything was wrong to which he replied, "I got dis..."

When questioned as to whether anything was missing, she stated "Only the milk."

According to Farnsworth, the Reverend's son has been known to raid the refrigerator at all hours of the night. "I'm not one to cry over spilt milk, but I just can't help it," she told Farnsworth. "When Charley says he's got dis, he means he's got milk," stated the Mrs., adding, "Not only has he made off with our milk, he killed our breakfast. The kid is a cereal murderer."

Numerous warnings were issued, including yelling, "Stop Thief!" However, attempts to keep her son out of the fridge in the middle of the night were unsuccessful.

Further details are unavailable at this time, but the Preacher's wife did disclose that future plans for imposing a kitchen curfew along with a refrigerator lockdown are underway, and that her husband slept through the entire occurrence. 

No charges were filed but the 8612 Precinct Insomnia Police have offered her an all expense paid trip to Sleepy Town. The Preacher's wife stated that she looks forward to an a-rest just as soon as she returns from the Loony Bin.

                                                              * * *


Sherry McCaulley Palmer is the author of Life With Charley: A Memoir of Down Syndrome Adoption, available at: 


The following is a review from Amazon:

Three Cheers for Charley! October 15, 2014
By Sandi Hutcheson (Author, Looks Great Naked)

"There are times when we just have to hold our breath and jump in," Sherry Palmer writes of the decision she and her husband, Brad, made in 1990 to adopt a baby with Down Syndrome. Life With Charley: A Memoir of Down Syndrome recounts their joyful journey, and it is a beautiful story. Palmer is a gifted storyteller whose honesty and candor and all-out love for her son will earn her readers' deepest respect. You'll laugh, you'll cringe, you'll wonder how she does it, and you'll hope for the pleasure of someday meeting Charley and his parents in person."

                                                                           *  *  *

To visit Sandi's Amazon page, please follow this link: http://www.amazon.com/Looks-Great-Naked-Sandi-Hutcheson-ebook/dp/B00AW4DDUS

Thursday, December 18, 2014

God Things




For some reason, this post will not maintain a consistent font size throughout. That's okay though, as long as you have x-ray vision toward the end of the post. Though tiny, I mean it just as much as the rest of the post - maybe even more. God things come in good packages. Don't adjust your screen - that wasn't a typo. I meant to say God things. Chromosomes are God things.

Sometimes I look into the eyes of my precocious, funny, sweet-natured, son and wonder how the world got so lucky.  How did I get so lucky? God must have loved us all so much to have handed out those God things known as extra chromosomes. True, they aren't for everyone. Only a select few are to know the wonder. The forever innocence. The dance of Down syndrome. 

"But Sherry, you don't know the heartache of waiting 9 months for the perfect child only to have your hopes and dreams crushed by a An extra chromosome called Down Syndrome," you might say.

That's true. Those of you who know me already know my story, how Charley came to live with us. 
Just because I didn't wait for 9 months for the perfect baby doesn't mean I didn't want one. The thing is, in my opinion, I got one. 

When I read about that nut case in Denmark who thought it would benefit the world if those who have been blessed with an extra chromosome were eliminated from the human race, I wept. Then I went directly to Amazon and purchased Mardra Sikora's essay, "Arguing Eugenics." 

Want to know more about this heated issue? Mardra explains it in this well-written essay that is grounded in research and personal experience, Mardra Sikora's "Arguing Eugenics" extends beyond the subject of genetic testing (for the purpose creating a society free from the burden of Down syndrome) and into the heart of a world in danger of eliminating much more than an extra chromosome. As a writer and mother of a young adult with Down syndrome myself, I applaud Sikora's ability to lay out the facts while making the reader think with their hearts through the logic of her son Marcus.

"Arguing Eugenics"(You can find it on Amazon), takes a subject often written about in medical and technical terms, and fine tunes the lens to so those unfamiliar with Down syndrome can see clearly how whole communities would suffer the consequences of eliminating often the most compassionate among us. If I were to sum it up, I would wager to say that a world without Down syndrome is a world in danger of reducing itself to breathing in and out. While Sikora does not glamorize naïveté regarding special needs individuals, be it children with cancer or those who are born with spinal bifida, rather, she is a realist who sees the value in every human life, while charging the rest of us to do the same. What gives anyone the right to decide who has value and who does not? What gives anyone the right to decide that another human being is a burden? I agree with Sikora one-hundred percent, no one has the right to set that criteria. Not Denmark, not anyone.

I found Sikora's essay to be an invaluable piece of research delivered with wisdom. Mostly, however, I found it to be a fair synopsis of the lives faced everyday by special needs families. There is no perfect person. Aiming for a perfect world filled with only perfect people (which means a world without that extra chromosome) is no world I want to live in. I cannot imagine a world without the unconditional love of individuals with Down syndrome. Apparently, neither can Sikora.

There is a society, however that does not agree. If Denmark is knocking on that door, I say don't open it. Be very afraid. When one knocks others do too. Before we know it, Down syndrome will cease to exist, and so will life as we know it for our loved ones who are game changers.

The choice is ours. Want a perfect world? Step right up. Get your one-way ticket to Denmark. Personally, I'd rather count my God things. My chromosomes. Want a world of perfect unconditional love and acceptance? Then send in the Down. Rock on, Marcus. Be that agent of change that Sikora writes about. Be that God thing. And listen up folks, don't even think of sweeping this one under the rug. Sikora is in the house.


We adopted Charley twenty-four years ago at Christmas time. Believe me, there is nothing you could wrap and stick under the tree that could come close to the gift God game me that day. It was the perfect God-thing gift. Did we know what to expect? What to do? How do do it? No. 


But here's one thing I do know. When I count my blessings, I count God-things. That includes chromosomes.


Merry Christmas to me.


                                             



Sherry Palmer is the author of "Life With Charley: A Memoir of Down Syndrome Adoption" (available at Amazon)