Showing posts with label Family. Show all posts
Showing posts with label Family. Show all posts

Monday, November 16, 2015

Celebrating National Adoption Month



Here at Life With Charley we have lots to celebrate during National Adoption Month.
#lifewithcharleyanddownsyndrome

Here are just a few reasons...











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You are invited to read the first two chapters free, at: Zharmae Publishing Press

Thanks for stopping by our little corner of the world...Please, share with your friends. Thanks!


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@1pageturner: @isdonn #NationalAdoptionMonth #AngelsInDisguise @AshleyNMe1 #downsyndromeadoption

#AngelsInDisguise   #NationalAdoptionMonth  #InternationalDownsyndromecoalition  #Downsyndromeparents #worlddownsyndromeday

Tuesday, September 8, 2015

For the First Time





Waving to the kids down the street...



Two boys knocked on our door last week.

“Do you have any work we can do?” they asked.

Charley stood on the stoop and sized them up. He’d seen these boys before. They are part of the neighborhood group that plays basketball a few doors down. The group that laughs and runs and throws the ball with Charley, the “Down syndrome” guy watching from the doorway. Knowing he wants to play, but rarely asking him to join. “You can’t just invite yourself,” I tell him. This makes no sense to Charley.

Helicopter parent. That’s me. I could and probably should just let him go, grab a basketball, and strut his stuff. But somehow, I can’t stomach the thought that they might snub him and hurt his feelings. They look to be around middle school age.

“What kind of work?” I asked, thinking of all the nerve. You can’t ask Charley to play, but you can ask me for work.

“Anything,” the boys said, proceeding to tell me they were saving up to go to camp.

I thought about this. Might be good for Charley to see the neighborhood kids taking the initiative to look for work and pay their own way. Might rub off on him.

On the other hand, it might be good for the neighborhood kids to interact a little with him, that “down syndrome” guy who lives on their street.

“I do have a project, but it’s a bear,” I said. “Think you’re up to it?”

“Ok.”

“And I can pay you, but not a lot.”

“That’s okay.”

We stood there a few minutes longer chatting about their school, exchanging names.

“All right then, come over around 10:00 the morning of Labor Day, and we’ll have a project for you.

Now here’s the thing. I hadn’t forgotten about these boys. But they weren’t exactly the first thing I thought of when I got out of bed this morning. Nor did I expect them to show up at 8:00 a.m. It’s a holiday. I slept in. First cup of coffee. You know how it is. And just about the time you think about jumping into the shower, ringy dingy.

Charley is like the doorbell police.

“Whozit?” he says.

“It’s us, we’re here to work.”

Charley looked at Brad and me. “We’re here to work,” he said. Never let it be said that he was about to let those boys work in his house. Not unless he was in the thick of it.

He opened the door and invited the boys in.

“You sure this is okay with your Mom?” I asked.

“We don’t have a Mom,” one of the boys said. “We haven’t seen her for years. She walked out on us. We live with our Grandma.”

I could feel Charley’s eyes on me like he was seeing me for the first time. He put his arm around my shoulder. “My mom,” he said, under his breath.

I explained that the garage was more than a one day job, but that this was their lucky day. “We’re cleaning the closets today.”

“Sounds good,” one of the boys said.

“You haven’t seen the closets yet,” I said.

“How bad can it be?” The other boy said.

“You don’t understand,” I said. “My mom has given me bags and bags of her clothes. We have to go through them and hang them up.”

Brad and I headed back to the bedroom and opened his closet door. 

I saw the boys exchange glances. Yep. It could be bad.

Brad looked at the closet. Not that he doesn't see it every day, but it was almost as if he was seeing it for the first time. "Yikes."

“Let the digging begin,” I said.

We each had a job.

The boys pulled things out of the closet.

Charley stuffed bags and boxes full of clothes for the clothes closet at church. 
Out of the closet and into the car...


Brad cleared the racks for clothes to be hung.

I made the decisions. Brad would override them. Then he’d make decisions and I would override them. The boys scratched their heads. Charley rolled his eyes.

About an hour later, The boys downed a bottled water while Charley crossed his arms and leaned against the door frame.

“Whew!” one of the boys said.

“Glad that’s done,” the other boy said.

“That’s the first closet,” I said. “One closet down, one to go.”

The boys exchanged glances again.

Charley opened my closet door. He put his hand on his hips. “Mommy a mess,” he said to the boys.
"Mom's closet a mess..."


“That’s a lot of stuff,” one of the boys said.

“This could take hours,” the other boy said.

“That’s why they call it Labor Day,” I smiled.

“That’s my mom,” Charley said, patting me on the back.

Closet number two was different from closet number one. And why not? A woman’s closet is different than a man’s. I had to try on each piece of clothing, hold it up, and assess whether it was to stay or go, while the boys goofed off with Charley. Trying on scarves, putting boxes over their heads, comparing cell phones. Whooping it up. There comes a time when you no longer hand items to the person across the room. You launch it and hope it doesn’t take the ceiling fan down in the process. 

About a half hour into this fiasco, Brad reached his limit of letting me take my time, and into the closet he went. Flinging hangers around. Dropping things. He was ready to throw it all out. 

At one point I looked up and there were three of us in the bedroom. Charley, Brad, and me. And where were the boys? Kicked back in our recliners in the living room. I had to laugh.

“We’re almost done,” I said.

The boys went back to the bedroom to finish the job. 

All four guys in the bedroom. Having their way with my closet.  I could have used a box over my head, I can tell you that. I thought about marching back to the room and controlling the situation. Instead, I assumed the position in on the couch and waited them out.

About 20 minutes later, they emerged. “Done,” they announced.

We told the boys earlier that we would have to pay them later today, to which they agreed, but we thought it best to remind them.

“We don’t have any money on us at the moment,” Brad said. Before he could reiterate that he would stop by their house and pay them later, Charley reached into his pocket, pulled out a dollar, and handed it to one of the boys. “Good job,” he said.

The boy looked at the dollar, like surely this isn’t all we’re getting paid.

He looked at me.

“We’ll stop over at your house later after we’ve been to the bank,” I said.

He started to hand the dollar back to Charley. “You need to accept that dollar,” I told him.

The boy stuck the dollar in his pocket. "Thanks man," he said.

“Charley, do you have a dollar for the other boy?”

“No, that’s all,” he said, standing a little taller, with a big grin on his face. I could see he was proud to be giving that boy his last dollar.

You can't buy a priceless moment like that


You can’t buy a priceless moment like that.

Here was a boy I thought could role model a good work ethic for Charley, and he did.

But just when you think you’ve got it all neatly wrapped, you find a little gift you never expected. Because here was my supposedly special needs son, role modeling generosity for him.

The expression on the boy’s face said it all. He didn’t look at him like that “Down syndrome” guy.  He looked at him with respect.

Like he was seeing Charley for the first time.

Delivering money to the boys at their house



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Bio:  Sherry Palmer is the author of “Life With Charley: A Memoir of Down Syndrome Adoption.” You can find it at: Life with Charley

Please visit Charley on Facebook at: Life With Charley - And Down Syndrome

Thank you!





Wednesday, August 19, 2015

Happy 50th Birthday, Chris Burke!





Dear Chris,

I would like to add to Mardra Sikora’s brilliant Open Letter of Gratitude and Well Wishes to Actor Chris Burke regarding your birthday. From my heart, I wish to add the following…


“We had been married for six years, during which headlines included such historical events as the Space Shuttle Challenger Disaster, the release of Nelson Mandela after twenty-seven years in captivity, and the invasion of Kuwait by Iraqi troops, setting off the Persian Gulf War. 

Life Goes On was on primetime television, starring Chris Burke as Charles Thatcher, a teenager with Down syndrome. And somewhere in Texas was a Desert Storm baby in a foster home. He was soon to be ours. We would name him “Charles” in honor of “Corky,” Chris Burke’s character.”

Then


And so it was. Twenty-five years ago a two month old baby became the center of our world.

And in the midst of it all, there you were. Charley was too little to watch you, but we sure did. He had no idea that there was a teenager named Chris Burke, who was changing the perception of people with Down syndrome. 

Week after week we tuned in to see what “Corky” would do next. We laughed, and sometimes we cried. We watched as your television family paved the way for acceptance, showing us what family is all about.

I remember thinking what a brave person you were, memorizing all those lines, and what an achievement that was. We have no way of knowing how many times you had to redo the screen takes, but we assumed you had to redo your share, just like the other cast members, in their attempts to get it right. At times it seemed as if it was difficult for you to get the words out. And yet, you never gave up. Perseverance. 

For parents of children with Down syndrome, you did more than just step in front of a camera each week. You gave us hope. Made us see the possibilities. Encouraged us to dream. 

Chris, there is a reason we named Charley after you. We wanted to thank you for all you have done for people like our Charley, living with Down syndrome. For being the pioneer  for others who now enjoy a countless successes because of you. For letting the world know that an extra chromosome only adds to who you are, and that quality of life is a choice. For opening the door for those who might not have had a chance, and educating the world that Down syndrome is not something to pity, but to celebrate.

Because of you, Chris, the “Corky’s” of this world enjoy a freedom of self and all the joy that comes with being happy with who you are.

On August 26th, you will celebrate your 50th birthday. We want you to know, Chris, that you have a world full of friends who will be celebrating with you.

Celebrating the 50 years you have spent opening the world to our kids. And Chris, we want you to know that when we look at our Charley, we see a bit of you. 

Thank you Chris, and happy birthday!

With great regard and love,

Sherry Palmer


 Chris, meet Charley, your namesake!
Now

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Follow Charley Palmer on Facebook at: Life With Charley - And Down Syndrome 


and also Charley’s blog at: Life With Charley 

Wednesday, August 12, 2015

How My Son Fixed A Hotel Problem that I Couldn't



Photo, courtesy of Angels in Disguise. Look for the link on this site. You will love it!


This is the face of a leader. 

While there are some in the world who might think of a person with Down syndrome as marginal, let me assure you, that’s a misnomer. Even so, I think it’s safe to say in general, people would not consider a person with Down to be a leader.

What exactly is a leader, anyway? I believe a leader is a thinker. A problem solver. A decision maker. Someone who doesn't wait around for others to make things happen. Things happen because the leader makes them happen. Not by railroading others, or demanding, or coercing. But, by facing the giants. 

By giants, I mean facing those things that seem insurmountable. What may seem impossible to some seems a matter of course to a leader. When it comes down to it, a leader sees the need, signs up for the challenge, and then gathers the team to get it done. 

A leader sees the abilities in others, calls them to the task, and then gets out of the way and allows them to do it. 

A leader inspires others. Not with their elevated sense of self, but by their sense of seeing what's possible and elevating others. A leader is fearless.

Sometimes I forget what a leader Charley is. How he kicks his Down syndrome out of the way when facing his giants. How he summons that extra chromosome like a sword, slaying the obstacles in his path. And I saw it in action first-hand this morning. 

Here's what happened... 

We'd been staying at a hotel in Louisville for three days while visiting our families. It came time to leave and I told Charley I would go sign out while he finished packing. If you know anything about that twenty-first chromosome called Down syndrome, then you know what creatures of habit they are. Routine-oriented all the way. 

As far as Charley is concerned, part of the routine of staying in a hotel is using the luggage cart to unload and re-load the car. 





When we arrived, the luggage cart was available. But when we went to check out, all the carts were in use. 

“Gweat,” he said, slapping his palms to his thighs. “No carts.” (Can’t say I blamed him. I sure wasn’t carrying all our junk to the car.)

"Sorry honey," I said. "We'll just have to wait till someone brings one back. Then we can grab it." With that, I sat down on one of the chairs and waited. And waited, while he shifted from foot to foot. Was I to stop at nothing? First, no luggage cart, then trying to bore him to death with waiting?

He looked at me, like, see ya, and headed back to the room. I figured he was going to wait there. I figured wrong. 

About three minutes later here came Charley, into the lobby carrying my hanging clothes, three bags, his swimming fins, goggles, and my makeup case. Following close behind him was a tall, husky man carrying my suitcase and a Charley’s backpack. Behind him was another man. He was carrying our cube of Coke Zeroes, my journal, some books, and a box of snacks we just had to have for our trip.

"Dis way," Charley said, pointing. The men followed. Forgive me, but my mouth dropped open.  

Here was this little guy (Charley), maybe all of 5 feet, directing these two husky six-feet or so men, and they headed outside. "Dat's my Mom," he said to the men, as they went by. "Deese my fwents, Mom."  

The men nodded at me and said, "Hiya Mom, nice to meet you." 

I don't how else to say this, but I could have dropped and rolled right there. You've got to be kidding me. 

There was only one thing left to do; follow them to the car and grovel, followed by some serious apologizing. 

"Did he con you into carrying our luggage?" I asked. 

"Not exactly," one man said. "He said he needed help, so we helped." (I could just envision Charley in the hallway of the hotel, flagging down people on their way to the lobby; “Need help here,” and pointing to the room where the mountain of luggage waited.) 

"Kanks guys," Charley said, and slapped them a high five as the three of them headed back into the hotel.  

I pulled the car around to the entrance of the hotel, thinking it would be easier for Charley and me to get the rest of our stuff. 

Um, did I say Charley and me?  

Scratch that. Because the next thing I know, Charley's emerging from the hotel with a woman following close behind, and she happened to be carrying what was left of the case of bottled waters we had brought with us. Into the back of the van it went.  

He turned and grinned at me. “See?”

Again, my chin nearly hit the ground. 

"Charley, you just can't go asking people to do things like this," I scolded. 

"Welax Mom, I got dis." 

He sure did. 

Before I knew it, the car was completely loaded, and there wasn't a luggage cart in sight. 

Now. You may think this was rude. You may think it invasive. You might even consider it demanding and inappropriate. And I suppose by most standards, it was. But I couldn't help smiling at what a problem solver my supposedly "challenged" son is. There I was, resigned to sit and wait until a luggage cart showed up; while he was busy taking care of the challenge at hand. Facing the giants.

A few minutes later we met my sister for breakfast. When we went to leave, Charley sat down in the waiting area while we paid the bill. He wasn't sitting there very long when a man approached the door pushing a stroller with a small child. I saw the man, and the waiting area filled with people. I also saw the only person who jumped up and raced to hold the door open. It was Charley.  

That was a moment of clarity for me. It wasn't that Charley was trying to con those travelers at the hotel into doing work for him. He simply needed help. He had a task at hand that seemed too much for one person, and he set about gathering his team. To him, that seemed logical. And, bless him, he didn't act like me. Not once did he issue an apology for inconveniencing them. To him, people should help people. And that's just the way it is. 

When I think of all the leadership positions I've had over the years, it makes sense. Every good leader understands team work. They also understand the concept of paying it forward. (Apparently, so does Charley). You help me, and I'll either help you, or I'll help someone else when the situation presents itself.  

It's a simple concept, really, this you help me and I'll help you mentality. And if it’s so simple, then why are we so surprised when a supposedly simple person figures it out? 

I'm embarrassed at how often I underestimate him. How little I still know about that extra chromosome called Down syndrome. But I'm equally impressed at the things he teaches me. 

Does this mean I'll recruit travelers to help me with my luggage when he isn't around? Probably not. Does it mean I won't fuss at him when he sets out recruiting his team, especially when it’s a team he’s never even met? Probably not. 

What it does mean is that I can see him in a new light; that of a person who faces his giants, whether they are people or challenges. 

It also means that when he's faced with those challenges, he's a thinker. He finds a way.

As a mother of a special needs adult, my whole life has been about facing the giants… 

  • The massive preconceived notions of that extra chromosome and all the challenges that come with it. 
  • The extensive health issues that often accompany Down syndrome. 
  • The wide schisms that so often cause those roadblocks in his social development.  

Yes, life has its hurdles. But sometimes it takes an extra chromosome to show us all how to take a leap. 

When I think about it, the world may crumble around us, but the one left standing will be the one who doesn't cower just because the situation seems bigger than he is. 

You’ll know him when you see him. Just follow the leader. 


Sherry Palmer is the Author of Life With Charley: A Memoir of Down Syndrome Adoption. Available at: Life With Charley


Thanks for visiting!

Please visit Charley on Facebook at: Life With Charley - And Down Syndrome


Friday, July 17, 2015

Joy Ride



This may look like the face of an innocent, but I assure you, it is not.

No, this is the face of someone who did his level best to talk me out of the electric cart I was using in Walmart.

"Owww, my foot hurt," he said, hobbling along beside my cart.

Whaaaat? His foot was not hurting.

"Ooooo, hurtin' me in my side," he wailed.

Nice try. Nothing wrong with his side either.

So he followed along behind me as I set out in pursuit of the Hardware Department to find a screwdriver.

But first, I'd have to find a way to get to get there. Not that I couldn't walk it, but I'm due a cortisone shot and what may seem like a short jaunt to you seems like a cross-country hike to my knees.

Somewhere during our Walmart excursion I asked Charley if he would like to go to the front and bring me one of those electric carts. "My knee is in bad shape," I said. "I don't know if I can walk all the way with this cane, and then back again."

Off he went. And where he went, who knows. Around the corner, down the aisle, around another corner, down who knows how many more aisles, while I stood in the main aisle desperately searching with my eyes. Where. Is. He?

He had to be somewhere, but where?

Finally, just as I was about to commit the ultimate embarrassment sin by having him paged, here he came. Big as day, happy as could be.

"Did you think I sent you to get that cart so you could take a joy ride?" I asked, tapping my foot as he approached.

"I having fun, Mom," he said, grinning that grin of his.

"Well get off, I need the cart." I'm sure my tone was curt.

"Be nice, Mom," he said.

So off we went, heading to the back of the store. 

That's when the limping began.

First he held his foot, then, his knee, then his hip. 

"Cut it out," I said. "You're not injured." 

"But I want dat cart. Please...I want it bad."

"I know, but you can't have it. It's for people who have trouble walking."

He sat down. Right in the middle of the aisle. "My foot bwoke."

"It is NOT broken. But I know something that will be, if you don't get up." I glared at him.

He grinned at me.

We resumed our trekk to look at screwdrivers.

And speaking of drivers, did I mention that someone had a screw loose? That would be me. That would be the moment I turned my back to you-know-who and resumed my journey to the hardware department with full confidence that he was right behind me.

Suddenly the hobbling ceased. So did the whining.

Did I mention that when I turned around, Charley was following right behind me? In his very own cart?

I nearly fell out of my seat. 

"Where did you get that?"

"I no know," he said. Like sure. That cart just appeared out of nowhere for your traveling pleasure. Keep your hands inside the ride...

"Well you had to get it from somewhere."

"I bowwote," he said as he pointed toward the paint supplies, and vroom, off he went.

I followed close behind, then made him follow me to make sure he wouldn't mow anyone down.

I couldn't help thinking about how it must be for Charley, seeing all the guys his age drive, knowing he can't. Wishing he could ride off into the sunset with his arm around some girl. I know that's what he envisions, because he tells me so all the time. I feel for the guy. I really do.

But not so much that I couldn't wait to get my hands on him. We had a little talk about those carts, and how taking someone else's cart probably left them in a lurch. I wasn't proud of that. So we went all over the store once more, looking for who-ever-it-was he'd "bowwote" it from. After all, they had it first. And worse, what if they were stranded? 

"When we find who that cart belongs to, you are going to apologize; you got that Mister?"

"Ok Mom. Sorry..."

Never did find the poor soul. Part of me hoped they'd gotten a ride to the check out, and part of me was afraid we'd come face to face and I'd have to admit that my son was the culprit.  That I qualified for Worst Mother of the Year. Shame overload. That this 25 year old opportunist with a beard had hopped on their cart and left them in his dusty trail. Worse, that I hadn't taught him better. Pastor's wives (spouses)...are you with me here? Our kids are supposed to be perfect, right? Eh...not so fast...

I tried, believe me, I did. But even with everything I've attempted to do right as a parent, and in the backdrop of how wrong this was on so many levels, all manners and consideration for others go out the window when faced with a go-cart and a store that has morphed into a race track. What I wanted to do was clobber him (after I stopped laughing - to myself of course). But since I'm a better shammer than clobberer, I would just have to wait and fuss in the car. (Which I did).

There was only one thing left to do. Get the heck out of the store. 
"Start your engines," I said. 

"Woohoo!" he squealed. If he'd had long hair it would have been flapping in the breeze. And off we went, heading toward the entrance where hopefully some other shopper would be able to salvage their knees.

I hate to admit this, and I know it's wrong, but it was the most fun I've ever had at WalMart. 

Me in my cart, hoping we wouldn't get caught. 
Him, on his joy ride.


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Sherry Palmer is the author of "Life with Charley: A Memoir of Down syndrome Adoption." You can find it at: 

Life with Charley
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