Wednesday, March 2, 2016


There is an old song, titled "Till There Was You."

It's one of those songs that stays in your head. You find yourself humming it in the shower, smiling a little at the thought of someone special. Someone who changed your life.

But what if that someone is gone? What if you don't know how to explain it to your precious child, that the person they loved so much is gone? And where did that person go?

I was faced with this a couple of weeks ago after Mom, Charley's "Granny" passed away. Theirs was a special relationship. When Mom was here, they Skyped every day, and did their share of laughing at each other.  He would tell her of some infraction I'd committed, like making him clean his room. She would tell him he better get busy and he'd laugh out loud.

There was no limit to how much Mom was amused by Charley. She laughed at him on a regular basis, and he loved it. They both had big personalities...and yes, the two deserved each other.

Charley and his Grammy. Or, Gwanny, as he called her.

Charley visited his Granny at the nursing home a week before she died. He sat in her favorite chair, and withdrew into himself, watching her. He didn't have to say a thing...his face said it all. The fear of losing this important person in his life was unthinkable. It's still unthinkable.

So he buried his head until he finally wore himself out, and fell asleep. 

Mom told Charley she loved him, and he kissed her. 

The next time he would see his Granny, it would be at the funeral home, where I made a HUGE mistake.

Us parents of people with Down syndrome. Or should I just say, me. I'm so afraid of scaring him. I want to shield him from life - and death.

There was no viewing, no closure. Just an urn.

How do you tell someone with an extra Chromosome that the person he loves is in an urn? I wasn't prepared to explain cremation. I'm barely prepared to think about it, much less put it in words my chromosomal son can understand. 

He looked for her. 

Of course he did.

"Where my Gwanny?"

"She's gone to heaven, honey," I said.

"Where is she?"

"She's with the Lord."

"I want to see her."

He wasn't the only one. She would have known what to say. Me, on the other hand? Not so much.

After the funeral we headed out to the gravesite where we released a single dove. 

"Where Gwanny?" he said again.

"See that dove?" I said. "That's Grammy. She's flying up to heaven to be with Bobby (Dad)."

"No, not." 

He looked at me like I was an idiot. Or, at least, a liar. Grammy hadn't turned into a bird. Just who did I think I was talking to?

There wasn't much I could say.

So we didn't talk about it. We did what all of us McCaulley's do - we withdraw, and think it will go away. And it did.

Till yesterday, that is.

We were sitting in the den, and he was eating oatmeal pies.

Out of nowhere, he started to cry.

"I miss Gwanny," he said.

I've known this was coming. He has delayed reactions.

"Granny loved you very much, Charley," I said.

"I love her," he said.

"I know you do, honey."

"Pwease, call Gwanny."

"I can't sweetie, Granny passed away."

He cried some more. I kissed him. Held him.

"You'll just have to Skype with me, instead," I said.

And we did.

He went to his room, and called my cellphone.

And called it,

and called it,

and called it...

I suppose it takes what it takes.

Now he's calling me. And calling me. And Skyping me. And Skyping me. And...

It's driving me crazy. And yet, it isn't.

Mom would have like that.

Thanks, Mom.

RIP, Gwanny


  1. Prayers for your sweet family! Until you meet again!

  2. Oh, dear heart! Sherry, I was so sorry to hear of your mother's passing. Grief is such a terrible, dreadful thing. And yet, I've found time and again while in the throes of grief, that it also contains moments of such beautiful clarity and perspective. You've captured one here, with this beautiful tribute. Sending you and your family so much love, light, and warmth and wish you as much comfort as you are able to receive. And even though Charley had to say "Goodbye for now" to her, I'm glad he had a Granny like her. Everyone deserves to be loved like that.

  3. So touching, heartbreaking and yes, some funny in the typical Sherry style. Big hugs for you, Charley, and Brad ~ jenny s

  4. "I suppose it takes what it takes." You are awesome. Bless you all.

  5. Sherry, you have made me cry like never before. I have a very sweet cousin back home (in Spain) with that extra chromosome as well. He has lost both his parents now, his 2 sets of grandparents, his older sister... and yet is the most loving person ever. I cannot even fathom what your son has been through losing his "gwammy"... or you for that matter. But I love your honesty, being candid about how you feel and how you deal with both your emotions and his. I know when people say "be patient" is easy to say, hard to do! I have a 3 1/2 year-old with certain delays and trust me, at age 44, patience is the least that I have! :) If you do believe in God, I highly recommend buying Kat Kerr's "Revealing Heaven". This, a part from the Bible, is the only book to have truly hit my heart in a very calming way, knowing that some of my family (especially some of the family members my Down Syndrome cousin loved very much) are waiting for him in Heaven. Please don't be so hard on yourself. It takes a very special loving person to have such a loving & huber special child like yours! With love, always... Tanya Farreras Sanchez.